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    Last Updated: 10/30/2025

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    MediFind found 35 doctor with experience in Porencephaly near Palo Alto, CA. Of these, 33 are Experienced and 2 are Advanced.

    Location
    LocationClose
    35 providers found
      Advanced in Porencephaly
      Advanced in Porencephaly

      Stanford Health Care

      300 Pasteur Dr, 
      Stanford, CA 
       (1.9 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Melanie Hayden-Gephart is a Neurosurgery provider in Stanford, California. Dr. Hayden-Gephart is rated as an Advanced provider by MediFind in the treatment of Porencephaly. Her top areas of expertise are Meningioma, Brain Tumor, Metastatic Brain Tumor, Awake Craniotomy, and Gamma Knife Radiosurgery.

      Experienced in Porencephaly
      Neurosurgery | General Surgery
      Experienced in Porencephaly
      Neurosurgery | General Surgery

      Stanford Health Care

      300 Pasteur Dr, 
      Stanford, CA 
       (1.9 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Lawrence Shuer is a Neurosurgery specialist and a General Surgeon in Stanford, California. Dr. Shuer is rated as an Experienced provider by MediFind in the treatment of Porencephaly. His top areas of expertise are Meningioma, Choroid Plexus Papilloma, Pallister-Hall Syndrome, Awake Craniotomy, and Thrombectomy.

      Experienced in Porencephaly
      Experienced in Porencephaly

      Radiology Associates Of Southwest Louisiana

      243 Webster St, 
      Palo Alto, CA 
       (1.2 miles away)
      Experience:
      17+ years
      Languages Spoken:
      English
      Accepting New Patients

      Paul Ramirez is a Radiologist in Palo Alto, California. Dr. Ramirez has been practicing medicine for over 17 years and is rated as an Experienced provider by MediFind in the treatment of Porencephaly. His top areas of expertise are CAPOS Syndrome, Pleurisy, Pleural Effusion, and Visceromegaly. Dr. Ramirez is currently accepting new patients.

      Learn about our expert tiers
      Experienced in Porencephaly
      Pediatric Neurology | Neurology | Pediatrics
      Experienced in Porencephaly
      Pediatric Neurology | Neurology | Pediatrics
      750 Welch Rd, 
      Palo Alto, CA 
       (1.8 miles away)
      Languages Spoken:
      English

      William Gallentine is a Pediatric Neurologist and a Neurologist in Palo Alto, California. Dr. Gallentine is rated as an Experienced provider by MediFind in the treatment of Porencephaly. His top areas of expertise are Genetic Epilepsy with Febrile Seizures Plus (GEFS+), Seizures, Status Epilepticus, and Absence Seizure.

      Experienced in Porencephaly
      Pediatric Neurology | Medical Genetics | Neurology
      Experienced in Porencephaly
      Pediatric Neurology | Medical Genetics | Neurology
      725 Welch Rd, 
      Palo Alto, CA 
       (1.8 miles away)
      Languages Spoken:
      English

      Rebecca Levy is a Pediatric Neurologist and a Medical Genetics provider in Palo Alto, California. Dr. Levy is rated as an Experienced provider by MediFind in the treatment of Porencephaly. Her top areas of expertise are Aphantasia, Zika Virus Disease, Microcephaly, and Microcephaly with Spastic Quadriplegia.

      Experienced in Porencephaly
      Pediatric Neurology | Neurology
      Experienced in Porencephaly
      Pediatric Neurology | Neurology
      725 Welch Rd, 
      Palo Alto, CA 
       (1.8 miles away)
      Languages Spoken:
      English

      Isha Srivastava is a Pediatric Neurologist and a Neurologist in Palo Alto, California. Dr. Srivastava is rated as an Experienced provider by MediFind in the treatment of Porencephaly. Her top areas of expertise are Adrenoleukodystrophy (ALD), CACH Syndrome, Metachromatic Leukodystrophy, and Leukodystrophy.

      Experienced in Porencephaly
      Pediatric Radiology | Radiology
      Experienced in Porencephaly
      Pediatric Radiology | Radiology
      725 Welch Rd, 
      Palo Alto, CA 
       (1.8 miles away)
      Languages Spoken:
      English

      Fred Laningham is a Pediatric Radiologist and a Radiologist in Palo Alto, California. Dr. Laningham is rated as an Experienced provider by MediFind in the treatment of Porencephaly. His top areas of expertise are Knock Knees, Arachnoid Cysts, Choroid Plexus Cyst, and Familial Porencephaly.

      Experienced in Porencephaly
      Neurology | Pediatric Neurology
      Experienced in Porencephaly
      Neurology | Pediatric Neurology
      725 Welch Rd, 
      Palo Alto, CA 
       (1.8 miles away)
      Languages Spoken:
      English, Korean, Spanish
      Accepting New Patients

      Hyunmi Kim is a Neurologist and a Pediatric Neurologist in Palo Alto, California. Dr. Kim is rated as an Experienced provider by MediFind in the treatment of Porencephaly. Her top areas of expertise are Seizures, Epilepsy, Epilepsy in Children, and West Syndrome. Dr. Kim is currently accepting new patients.

      Experienced in Porencephaly
      Pediatric Neurology | Pediatrics | Neurology
      Experienced in Porencephaly
      Pediatric Neurology | Pediatrics | Neurology
      725 Welch Rd, 
      Palo Alto, CA 
       (1.8 miles away)
      Languages Spoken:
      English

      Jennifer O'malley is a Pediatric Neurologist and a Pediatrics provider in Palo Alto, California. Dr. O'malley is rated as an Experienced provider by MediFind in the treatment of Porencephaly. Her top areas of expertise are Drug Induced Dyskinesia, Cerebral Palsy, Focal Dystonia, Chorea, and Deep Brain Stimulation.

      Experienced in Porencephaly
      Radiology | Nuclear Medicine | Pediatric Radiology
      Experienced in Porencephaly
      Radiology | Nuclear Medicine | Pediatric Radiology

      Lpch Medical Group Div Of Lucile

      725 Welch Rd, 
      Palo Alto, CA 
       (1.8 miles away)
      Languages Spoken:
      English

      Helen Nadel is a Radiologist and a Nuclear Medicine provider in Palo Alto, California. Dr. Nadel is rated as an Experienced provider by MediFind in the treatment of Porencephaly. Her top areas of expertise are Collapsed Lung, Gas Bloat Syndrome, Ureterocele, Scoliosis, and Osteotomy.

      Experienced in Porencephaly
      Pediatric Neurology | Pediatrics | Neuroradiology
      Experienced in Porencephaly
      Pediatric Neurology | Pediatrics | Neuroradiology

      Lpch Medical Group Div Of Lucile

      725 Welch Rd, 
      Palo Alto, CA 
       (1.8 miles away)
      Languages Spoken:
      English

      Jenna Klotz is a Pediatric Neurologist and a Pediatrics provider in Palo Alto, California. Dr. Klotz is rated as an Experienced provider by MediFind in the treatment of Porencephaly. Her top areas of expertise are Dysferlinopathy, Duchenne Muscular Dystrophy, Seizures, and Genetic Epilepsy with Febrile Seizures Plus (GEFS+).

      Experienced in Porencephaly
      Pediatric Radiology | Radiology
      Experienced in Porencephaly
      Pediatric Radiology | Radiology

      Lpch Medical Group Div Of Lucile

      725 Welch Rd, 
      Palo Alto, CA 
       (1.8 miles away)
      Languages Spoken:
      English

      Erika Rubesova is a Pediatric Radiologist and a Radiologist in Palo Alto, California. Dr. Rubesova is rated as an Experienced provider by MediFind in the treatment of Porencephaly. Her top areas of expertise are Ureterocele, Pentalogy of Cantrell, Megalencephaly-Capillary Malformation Syndrome, and Marshall-Smith Syndrome.

      Experienced in Porencephaly
      Pediatric Radiology | Radiology | Neuroradiology
      Experienced in Porencephaly
      Pediatric Radiology | Radiology | Neuroradiology

      Lpch Medical Group Div Of Lucile

      725 Welch Rd, 
      Palo Alto, CA 
       (1.8 miles away)
      Languages Spoken:
      English

      Bruno Soares is a Pediatric Radiologist and a Radiologist in Palo Alto, California. Dr. Soares is rated as an Experienced provider by MediFind in the treatment of Porencephaly. His top areas of expertise are Pentalogy of Cantrell, Chiari Malformation, Pediatric Low-Grade Glioma (pLGG), and Stroke.

      Experienced in Porencephaly
      Neurology | Pediatrics | Pediatric Neurology
      Experienced in Porencephaly
      Neurology | Pediatrics | Pediatric Neurology
      725 Welch Rd, 
      Palo Alto, CA 
       (1.8 miles away)
      Languages Spoken:
      English

      Fiona Baumer is a Neurologist and a Pediatrics provider in Palo Alto, California. Dr. Baumer is rated as an Experienced provider by MediFind in the treatment of Porencephaly. Her top areas of expertise are Benign Rolandic Epilepsy, Seizures, Photosensitive Epilepsy, and West Syndrome.

      Experienced in Porencephaly
      Pediatric Neurology | Neurology
      Experienced in Porencephaly
      Pediatric Neurology | Neurology
      725 Welch Rd, 
      Palo Alto, CA 
       (1.8 miles away)
      Languages Spoken:
      English

      Miguel Moreno is a Pediatric Neurologist and a Neurologist in Palo Alto, California. Dr. Moreno is rated as an Experienced provider by MediFind in the treatment of Porencephaly. His top areas of expertise are Migraine, Concussion, Migraine with Brainstem Aura, and GAPO Syndrome.

      Experienced in Porencephaly
      Pediatric Neurology | Neurology
      Experienced in Porencephaly
      Pediatric Neurology | Neurology
      725 Welch Rd, 
      Palo Alto, CA 
       (1.8 miles away)
      Languages Spoken:
      English

      Katherine Mackenzie is a Pediatric Neurologist and a Neurologist in Palo Alto, California. Dr. Mackenzie is rated as an Experienced provider by MediFind in the treatment of Porencephaly. Her top areas of expertise are Tourette Syndrome, Conversion Disorder, Chorea, and Spasmus Nutans.

      Experienced in Porencephaly
      Pediatric Neurology | Neurology
      Experienced in Porencephaly
      Pediatric Neurology | Neurology
      725 Welch Rd, 
      Palo Alto, CA 
       (1.8 miles away)
      Languages Spoken:
      English

      Christopher Lee is a Pediatric Neurologist and a Neurologist in Palo Alto, California. Dr. Lee is rated as an Experienced provider by MediFind in the treatment of Porencephaly. His top areas of expertise are Seizures, Generalized Tonic-Clonic Seizure, Memory Loss, and Lennox-Gastaut Syndrome (LGS).

      Experienced in Porencephaly
      Neurosurgery | General Surgery
      Experienced in Porencephaly
      Neurosurgery | General Surgery

      Stanford Health Care

      300 Pasteur Dr, 
      Stanford, CA 
       (1.9 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Steven Chang is a Neurosurgery specialist and a General Surgeon in Stanford, California. Dr. Chang is rated as an Experienced provider by MediFind in the treatment of Porencephaly. His top areas of expertise are Arteriovenous Malformation, Meningioma, Trigeminal Neuralgia, Awake Craniotomy, and Gamma Knife Radiosurgery.

      Experienced in Porencephaly
      Neurosurgery
      Experienced in Porencephaly
      Neurosurgery

      Stanford Health Care

      300 Pasteur Dr, 
      Stanford, CA 
       (1.9 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Juan Fernandez is a Neurosurgery provider in Stanford, California. Dr. Fernandez is rated as an Experienced provider by MediFind in the treatment of Porencephaly. His top areas of expertise are Craniopharyngioma, Meningioma, Pituitary Tumor, Septoplasty, and Balloon Sinuplasty.

      Experienced in Porencephaly
      Neurosurgery
      Experienced in Porencephaly
      Neurosurgery

      Stanford Health Care

      300 Pasteur Dr, 
      Stanford, CA 
       (1.9 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Gordon Li is a Neurosurgery provider in Stanford, California. Dr. Li is rated as an Experienced provider by MediFind in the treatment of Porencephaly. His top areas of expertise are Primitive Neuroectodermal Tumor (PNET), Posterior Fossa Tumor, Metastatic Brain Tumor, Awake Craniotomy, and Gamma Knife Radiosurgery.

      Showing 1-20 of 35

      Last Updated: 10/30/2025

      What is the definition of Porencephaly?

      Porencephaly is a rare condition that affects the central nervous system. People with Porencephaly develop fluid-filled cysts or cavities in the brain either before or shortly after birth. The severity of the condition and the associated signs and symptoms vary significantly based on the size, location, and number of cysts. Common features include developmental delay, reduced muscle tone (hypotonia), seizures, macrocephaly (unusually large head size), spastic hemiplegia, speech problems, delayed growth, and intellectual disability. Porencephaly is usually the result of damage from infection or stroke after birth. In these cases, the condition occurs sporadically in people with no family history of the condition. There is an inherited form of the condition called familial Porencephaly, which is caused by changes in the COL4A1 or COL4A2 genes and is inherited in an autosomal dominant manner.

      When should I see a Porencephaly doctor near Palo Alto, CA?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Porencephaly doctor near Palo Alto, CA?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Porencephaly doctors near Palo Alto, CA?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Porencephaly doctors near Palo Alto, CA?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Porencephaly doctor near Palo Alto, CA?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Porencephaly doctor search results page. 

      Why is it important to get a second opinion from a different Porencephaly doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Porencephaly doctor near Palo Alto, CA?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Porencephaly doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Porencephaly doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Porencephaly doctors near Palo Alto, CA?

      Look for the filter feature on the left side of the Porencephaly doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Porencephaly doctor that offers video calls?

      Look for the filter feature on the left-side of the Porencephaly doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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